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Monday, May 31, 2010

sad but true ... hearing aid is an option ...


salam

hari selasa lepas kami bwk Ammar pegi ENT dept HKL .. Ammar ada full ear check up ... appt pkl 9 pg... tp biasalah, nama pon HKL ... punyalah ramai umat kat situ menunggu giliran ... Alhamdulillah, turn kami no 2 ... walau x ramai, tp jenuh gak menunggu ...

sebelum Ammar masuk dlm audiometri room tu, audiologist panggil parent (ibu @ ayah) ... tanya a few questions pasal kebolehan Ammar ... sejauh mana & sebaik tahap kepekaan Ammar terhadap bunyi ...

dan sebelum Ammar dibolehkan menjalani ujian ... Ammar kena amik ubat tido dulu ... supaya tidak mengganggu perjalanan ujian yg juga akan effect result ujian ...



lena Ammar tido ... audiologist pasangkan benda tu pon dia x sedar ...



alat tu disambungkan ke machine khas to read the signal dlm otak Ammar ...


lepas buat test ni ada satu lagi test ... buat kat dlm bilik sound proof ... x sempat nk amik pic pon ... then, result from both test digabungkan utk mendapatkan keputusan yg lebih tepat ...

the result?!??? hmmmm .... i would say not so good ... to be honest, aku agak kecewa .... the whole week aku rasa x bape nk ada mood ... mcm yg ada dlm kepala otak aku nih ...

ok, cut the chase .... ni yg audiologist bgtau kat aku pasal pendengaran Ammar and her plan selepas dia meneliti keputusan kedua2 ujian ...

1. behind both eardrums (left & right) ada liquid which affected his hearing (otitis media - O.M.) ... so, Ammar needs a regular check up with ENT specialist for this, utk clearkan liquid behind the eardrums before its getting worse (sblm infection merebak ke saraf pendengaran yg akan mengakibatkan kecacatan kekal) ...

2. 'kekurangan' Ammar ni bersifat konduktif (blom merebak ke saraf) which means it can be treated kalau diberi perhatian yg khusus bg mengelakkan Ammar terus mendapat O.M.

3. the audiologist, strongly recommend Ammar utk menggunakan hearing aid utk membantu Ammar belajar bercakap & berkomunikasi dgn lebih baik .... kalau tidak, akan menjejaskan pertuturan Ammar ... but before Ammar boleh gunakan hearing aid tuh, masalah O.M. yg Ammar slalu dpt tu kena settle dulu ... coz dikhuatiri bila Ammar dah start pakai alat bantu dengar tiba2 ada liquid meleleh kluar dari telinga yg akan mengakibatkan kerosakan pada alat bantu dengar tu ...

4. kos perbelanjaan utk hearing aid (1pair) approximately RM5 k ...



lepas dengar audiologist punyer explanation pasal Ammar ... aku jadik terkedu ... all this while aku ingt pendengaran & penglihatan Ammar ok ... sempurna .... sungguh aku x sangka ... tp xpelah, aku redha ... ini sume ketentuaNya ... aku tau, ada yg lebih baik menanti kami nanti ... Insyaallah ...



Wednesday, May 26, 2010

he is better now .. Alhamdulillah


salam

Alhamdulillah, Ammar is getting better ... dah xde simptom2 demam ... last dia demam was on saturday ... the same day aku bwk Ammar semula ke paed dia kat mutiara damansara tu ...

alang2 dah bwk Ammar ke situ, akubwk Adam skali ... soh doc jab Adam ngan vaksin influenza ... as precaution ... coz last 2 wks kat skool dia ada kes H1N1 ... paham2 jelah bdk2 nih ... bila soh pakai mask nk x nk je, dpan kita pakai, tp bila kat skool dorang bukak mask tuh ...



Adam's happy face ... walaupon tau dia nk kena jab still boleh grin gitu ... i think it's becoz he likes the doc so much ... kena jab pon boleh sengih2 lagi ...


Ammar yg berdebar2 bila doc check dia ... hehehe

a serious discussion about Ammar ...

punyalah susah nk check mata Ammar ... ni pon pujuk bagai nk rak!!!


anw, doc soh sambung antibiotic for another course of 7 days ... seems like the bacteria/infection is still there ... which explains y nape Ammar still having fever every now & then ... hopefully lepas abis this 2nd course ... the infection will be gone ... for good!!!

my next plan for Ammar is (after he's off antibiotics) to get him vaccinated ... pneumococcal dah amik ... nk amik influenza & chicken pox plak .. eh btw, any of u knows how much is the cost for chicken pox vaccine??




Friday, May 21, 2010

demam oh demam ... :'((



salam

kusut & serabut kpala otak aku ni memikirkan pasal Ammar ... petang semlm, pengasuh Ammar call aku bgtau tiba2 suhu badan Ammar panas, aku pesan pada pengasuh utk bg ubat demam immediately (seb baik aku bekalkan ubat demam) ...

aku x tunggu lama pastu, terus kluar ofis amik en hubby... x sabar nk amik Ammar plak... sambil bwk keta, aku tertanya2 sendiri ... knp Ammar demam lagi ... x pernah camni .. maksud aku x penah pulak bila Ammar on antibiotics dia still demam ... all this while once dia on antibiotics dia akan ok ... melainkan kalau antibiotics tu x sesuai ngan dia then, demam dia x kebah/berkurangan sampailah jumpa antibiotics yg sesuai ngan Ammar ...

tgh mlm tadi, Ammar demam skali lagi ... bkn sket2 ... mmg panas btol badan dia ... aku risau, mmg aku btol2 risau ... aku berjaga smpai pkl 3 pagi tadi ... just to make sure suhu bdn Ammar reda lepas bg mkn ubat ... sambil tu aku sponge bath kan Ammar ...


tgk tu ... temp bdn Ammar sampai ke 38.1 ...

bila Ammar demam, dia suka dipeluk ... sayang Ammar!!!


pkl 3 pg tu, aku baring sebelah Ammar ngan hati yg sayu, sebak, gundah ... x dpt aku nk gambarkan camne pedihnyer hati ni bila tgk Ammar sakit ... mcm2 yg aku pikirkan ... kebetulan baru2 ni aku ada baca article pasal down syndrome, mengenai penyakit2 yg related ngan down syndrome ... ada byk, selain congenital heart disease ... leukemia is another name yg slalu membuatkan aku rasa gerun & takot ... then bila aku teringat, salah satu simptom leukemia ialah infection & fever ... aku dah mengalir air mata ... sedih, sayu ... cepat2 aku padamkan ingatan tu ... biar ia pergi jauh2 ...

aku sentiasa berdoa supaya dijauhkan benda2 camni esp utk Ammar ... ckup lah ngan penyakit2 yg Ammar sedia ada skang ... paru2, jantung, sistem pemakanan ... jgnlah ditambah dan diduga ngan penyakit lain pulak ... sudah cukup aku melihat Ammar suffer ... melawan satu demi satu kesakitan yg dialaminyer ... kalau aku yg melihat dah cukup sakit ... apatah lagi Ammar yg melaluinyer ... sob sob sob ...

hari ni hubby aku amik emergency leave coz nk jaga Ammar kat umah ... aku dah x boleh cuti minggu nih coz hari isnin & selasa ari tu aku dah cuti ... skang giliran hubby plak ... minggu depan hari selasa nk cuti lagi ... utk appt ENT Ammar ... mintak2 hari tu Ammar sihat, sbb kalau x sihat Ammar x boleh buat audio test & check up ...

apa lagi yg patot aku buat utk bantu Ammar ye?? maksud aku utk antibodi dia tu ... dah mcm2 produk aku cuba .. sampai aku takot nnt produk2 ni plak akan bg side effect pada Ammar (sbb dah bercampur2) ... ya Allah ... bantulah aku!!!!



Thursday, May 20, 2010

Ammar & appointments ....



salam

ok .. entry kali ni special (special lah sgt!!) ... special not the right word lah kannn ... anw, hari ni utk menjimatkan masa yg x sberapa, aku buat 1 entry utk menceritakan 2 kisah ...

1stly pasal Ammar ... as some of u already knew/noticed ... Ammar kan down with Cellulitis since last saturday ... and he is now on 7-days course of antibiotics ... skang dah day 6 ... tapinyer ... ada tapinyer ... tapi kenapa plak tiba pkl 2 pg tadi Ammar demam ... temperature went up to 37.8 celcius ... terus aku bg PCM ... walaupon pg tadi Ammar dah x demam tapi tetap aku susah ati ... tu pon pg tadi ngan berat ati aku tinggalkan Ammar kat nursery ... huhuhu


pkl 2.30 pg tadi ... aku x bley tido tgk Ammar yg x selesa, kejap2 tukar position, kejap2 kang merengek plak ... sian dia, tido pon x lena ....



ok, ke kisah no 2 pulak ... ni perihal Ammar gak ... pasal appts dia kat spital ... mmg aku nih tiap2 bulan mesti cuti ... kalau x pasal Ammar sakit, pasal nk ke appts dia ... ada mcm2 appt ... appt cardio, appt ENT, appt therapy ... therapy bkn takat satu je ... ada 2-3 jenis ... tu pon aku dah stop pegi kat HKL nyer therapy coz nk startkan Ammar kat HUKM plak ... bkn nk ckp kat HKL tu x bagus ... but i hv my own reason to do so ....


appt kat IJN bulan 8 nnt, most probably on this date they will decide on the date ... date for Ammar's PDA occlusion

yg ni appt cardio & CDC kat HUKM ...

yg ni plak ENT appt Ammar next week, nk buat full check up coz Ammar kan slalu kena ear infection ...


Alhamdulillah, buat masa ni appt ngan surgery x payah buat lagi, melainkan ada masalah berbangkit in the future ... last jumpa surgeon 30hb mac ari tu ... bila aku dah tepek appt2 Ammar kat sini, barulah aku perasan ... ada satu lagi appt Ammar yg missing ... iaitu appt ngan medical team ... balik nk kena check nih ... kang termiss satu hal lah plak kann ...

oklah, nk buat reminder kat hp, balik kang nk carik appt medical lak ... daaaaa!!



appt/s - appointment/s



Wednesday, May 19, 2010

monster ...




salam

smlm aku cuti ... doc advise aku utk monitor Ammar kat umah dulu ... takot kang tiba2 fever Ammar spike plak kann ...

skang nih ... penat btol jaga Ammar kat umah .. coz Ammar dah smakin lasak & 'mengganas' ... iyer ... that is the exact word bg menggambarkan keganasan monster kecik aku nih ...

nape aku bagi nick name monster pada Ammar ... nilah bukti2nyer ...


stand lamp aku yg dah bengkok ... x tau camne Ammar buat sampai boleh jadik gitu ... huhuhu


kain baju yg belom sempat disimpan dalam almari ... habis disepahkan oleh monster kecik nih ...
Ammar in action .... habis dipunggah nyer segala tok nenek toy dia yg sebakul ... kalau boleh ngan dia2 skali nk masuk dlm bakul tu ...

bunga hiasan atas coffee table yg dah xde rupa ... bersepai dikejekan dek Ammar ...


yang ni pulak cara Ammar melipat kain ... tgk aku lipat kain, dia pon sebok nk lipat gak ... padahal baju yg dia pegang tu dah aku lipat ... suka2 dia pegi amik nk lipat semula ... hihihi





gambar2 di atas adalah sebahagian hasil kerja Ammar ... ada lagi sbnrnyer ... malu lak aku nk tepek sume kat sini ... nmpak naaaa umah aku cam tongkang pecah!!! :p

seriously ... kalau aku benti keje ... dok umah jaga Ammar ... i am very sure i will lose some weight ... x pon ... the other way round ... aku penat pastu melantak x hengat ... hahahahaa

honestly, i kinda relief & happy bila tgk Ammar yg melasak ... 'mengemas' segala ceruk & menjahanamkan bunga serta hiasan2 aku kat umah nih ... walaupon umah aku cam tongkang pecah ... aku redha ...

tetiba teringat pulak masa Ammar baby dulu ... waktu tu Ammar ngah sakit teruk kat ICU ... at one point aku terpikir ... sempat ke aku celebrate Ammar's 1st birthday ... bila tgk Ammar skang nih ... x sangka sgt ... pejam celik bln 11 nih genap Ammar 3 thn ... susah senang, suka duka perjalanan hidup Ammar, aku dah lalui ... Alhamdulillah, Ammar masih ngan kami ... he is our idol, true fighter & hero ... and also monster ... hehehe


Monday, May 17, 2010

CELLULITIS ...



Staphylococcus and streptococcus bacteria are the most common causes of cellulitis.

The skin normally has many types of bacteria living on it. When there is a break in the skin, however, bacteria can enter the body and cause infection and inflammation. The skin tissues in the infected area become red, hot, irritated, and painful.

Risk factors for cellulitis include:

  • Cracks or peeling skin between the toes
  • History of peripheral vascular disease
  • Injury or trauma with a break in the skin (skin wounds)
  • Insect bites and stings, animal bites, or human bites
  • Ulcers from diabetes or a blockage in the blood supply (ischemia)
  • Use of corticosteroid medications or medications that suppress the immune system
  • Wound from a recent surgery

Symptoms

  • Fever
  • Signs of infection:
    • Chills, shaking
    • Fatigue
    • General ill feeling (malaise)
    • Muscle aches, pains (myalgias)
    • Warm skin, sweating
  • Pain or tenderness in the area with the rash or sore
  • Skin redness or inflammation that increases in size as the infection spreads
  • Skin sore or rash (macule):
    • Comes on suddenly
    • Grows quickly in the first 24 hours
    • Usually has sharp borders
  • Tight, glossy, "stretched" appearance of the skin
  • Warmth over the area of redness

Other symptoms that can occur with this disease:

  • Hair loss at the site of infection
  • Joint stiffness caused by swelling of the tissue over the joint
  • Nausea and vomiting


salam

shud any of u wonder ... why Cellulitis?? ... yes people ... Ammar xde ear infections ... in actual fact, what he has now is Cellulitis - Inflammation of soft tissue ...

anw, it has been a long day for me today ... pagi2 dah ke spital, pastu balik umah amik barang, pastu patah balik spital ... ngan keadaan wad yg panas & ramai patient ... seb baik, kami x lama ... ptg kami dah ada kat umah ... tp x lama pon, lepas tu kluar balik bwk Ammar gi mutiara damansara ... jumpa paed specialist (doc yg sama aku pegi last saturday) ...

masa kami sampai, xde patient ... so xlah lama menunggu ... doc kata Ammar nyer 'cellulitis' is getting better ... means his body responded well with the antibiotics ... nothing to worry about, unless kalau bahagian yg merah tu jadik bruise or jadik cam kudis ... that is when i shud be worry ....

and the doc supplied us with another bottle of Zinnat (cefuroxime) ... masa jumpa dia last saturday dia kata antibiotics for 5 days course ... skang nih dah jadik 7 days course ... just want to clear things up ... and also ointment utk sapu kat mata Ammar ...

kat spital, xde bg apa2 pon coz its the same prescription ... cumanyer Ammar kena pegi buat ENT check up (complete audio test) on 25th may nih ... elok gak arr ... biar dorang check btol2 telinga Ammar ...


latest pic of Ammar ... taken 10pm 17/05/2010


apa2pon, aku sbnrnyer sgt2 relief ... as u can see kat pic atas nih ... bengkak kat muka Ammar dah makin surut & yg paling penting ... x merebak ... syukur sgt2 ... Alhamdulillah!!!

oleh kerana nk memastikan antibiotics tu betol2 masuk dlm badan Ammar, aku xde pilihan selain masukkan terus dari perut Ammar ... bila sakit2 camni bagus gak ada gastro, senang sket nk bg ubat ... kalau bagi ikut mulut mmg kompem separuh je yg ditelan ... yg lain tu ntah kemana2 sepahnyer ...


easy peasy ... x payah le aku nk bersilat nk kasik Ammar mkn ubat ...


so now, sehari dua nih aku cuti lagi kot ... just to make sure Ammar xde fever selain i need to monitor him closely ... and i wud like to take this opportunity to thank each & everyone of u for ur support & doa for Ammar's well being ... may Allah bless all of u ...


p/s : mode skarang adalah sgt lega & happy ... :))



Sunday, May 16, 2010

a quick update on Ammar's swollen face ...



salam

just a quick update on Ammar's condition ... this evening we mms this pic to Ammar's paed ... and this was her reply ... "Oh dear, that is cellulitis-inflamation of the soft tissue. You need to take him to hospital as he may need iv antibiotics" ... so skang nih aku ngah pack2 barang (still kat umah mak aku), lepas abis susu Ammar nih, we are going to rush him to the emergency ASAP!!!


ni pic tghari tadi ... by now, mata dia belah kiri tu makin sepet dan bengkak


hope nothing so serious, please pray for Ammar's well being ya frens ... thnk u very much, may Allah blessed each and everyone of u ... Amin!! :((



makin bengkak & kemerahan ...



salam

entry ni adalah kesinambungan entry aku sblm nih ... just nk update pasal Ammar & the ear infection yg dia ada skang nih ... gambar ni sume adalah mengikut turutan dari mula2 aku perasan telinga Ammar bengkak ...

pic ni masa kami baru sampai depan clinic pakar kat mutiara damansara tu ... pic taken around 2 pm ...

by 10 pm (same day) ... nampak the reddish part makin merebak ....

by 12 tgh mlm, muka Ammar dah nmpak lain .... obviously bentuk muka Ammar dah x balance ...



these 3 pics was taken this morning at 11 am ... as u can see that reddish part dah melarat sampai ke mata ... hidung Ammar pon nmpak kemerahan but am not so sure dah sampai ke hidung coz x nmpak swollen pon ... mata mmg terang2 dah nmpak bengkak ...

tetiba aku teringat, doc ada gak ckp smlm, there is a possibility Ammar kena gigit insect/s ... tp bila x nmpak kesan gigit or tanda tu susah gak nk pastikan ... as it is doc treat it as ear infection ....

to all my dear frens out there ... ada x sape2 yg penah kena camni??? or ada anak2 yg penah kena cam Ammar nih?? or maybe ada simptom yg sama mcm ni (muka/telinga bengkak + fever) ??? bkn nk kepochi, just to gather some info from org yg dah berpengalaman ... kot2 lah ada petua or advice yg aku boleh ikut ... hati ini sgt2 susah & x tenang tgk keadaan Ammar camni ...

how i wish i could bear all the pain for Ammar ... :'((

salam

skang nih dah pkl 1.45 pagi ... aku still x boleh tido ... bkn disbbkan aku xmo tido, tp hatiku x senang ... aku sgt2 risau ... susah ati ... dan amat2 sedih ... kalau diikutkan, ni mlm kedua aku berjaga ... smlm pon kalau dihitung dicongak aku tido dlm 2 jam maksimum ....

semalaman (mlm seblm mlm nih) Ammar merengek ... nk kata demam ... badan x panas, nk kata cuaca panas ... aircond baru elok je functioning, nk kata sakit perut ... xde plak tanda2 Ammar cam sakit perut ... puas aku pikir ... aku betol2 clueless ... sampai ke awal pagi tadi aku still wonder napelah Ammar meragam sampai x boleh tido semalaman...

kalau ikut plan, pagi tu (sabtu pagi) aku nk ke Rumah PSDM (Persatuan Sindrom Down Malaysia) ... ada ceramah, mmg aku look forward to attend this talk ... tp bila lepas hubby mandikan Ammar, rasa badan Ammar dedar plak ... haishhh ... pehal lak nih?? (aku berckp sendiri dlm hati) ...

pkl 9.30 pg tu sume dah siap nk pegi PSDM ... tp aku x sedap hati ... aku ckp ngan hubby, rasa cam x best nk pegi bila Ammar cranky camni .. bdn pon dah start dedar nk demam ... aku x tunggu terus bg ubat demam ... dah dekat2 pkl 10 tu, we decided utk duduk rumah je (to monitor keadaan Ammar) ... takot makin melarat plak kalau dibwk keluar rumah ...

aku mmg xde mood nk buat apa2 pon ... Adam dah merengek nk mkn kat luar ... as i said xde mood nk buat apa2 pon ... masak pon aku xmo ... xde mood! dlm pkl 12.30 tu Ammar nmpak ok (after bg 1st dose of ubat demam & baru bgn tido) ... nk bergurau dah ... xdelah nk nanges je mcm mlm sblm tu ... then kami pon siap2 nk makan/tapau food ...

baru je lepas pintu pagar umah ... aku notice something pada Ammar ...ya Allah!!! camne aku boleh x terpikir pasal telinga dia nih ... tetiba aku rasa i'm a bad mother sampai x notice telinga Ammar yg merah ... mmg bodo btol aku nih!!!


masa ni baru sampai clinic kat mutiara damansara tu ... Ammar terlena akibat terlampau ngantuk kot ... mlm sblm tu x boleh tido


the moment aku prasan telinga Ammar yg merah dan sedikit bengkak tu, terus aku bgtau hubby yg ngah drive ... dan2 tu kelam kabut aku carik no paed dia kat mutiara damansara tu ... call klinik paed tu and inform that we are coming over to see her ... make sure they wait for us to sampai sana ... (clinic tutup pkl 2 ptg, masa aku prasan tu dlm pkl 1.15 ptg, still kat ampang ... ngan saturday punyer jam x hengat kat ampang tu, am very sure that we are gonna be late)

Alhamdulillah ... jalan kami dipermudahkan ... elok plak walaupon keta byk, tp smooth je bergerak ... syukur sgt2!!!

sampai je clinic, x tunggu lama pon ... 10 minit je kot dah turn Ammar ... doc check kat dlm telinga Ammar tp x berapa nmpak sgt coz telinga tu dah membengkak ... tp disbbkan ini bkn 1st time Ammar kena ear infections ... doc treat this wth antibiotic for 5 days course ... hopefully it will help ...



pic pkl 10 mlm tadi ... exactly after 8 hrs aku amik pic yg kat atas tu .... nmpak yg merah tu makin ketara & merebak ...



ni pic Ammar lepas 10 jam after the 1st pic ... obvious sgt muka sblh kiri membengkak ... (Ammar lena lepas bg ubat demam & selsema yg doc supply siang tadi)

4 hrs lepas jumpa doc, the swollen became more obvious & reddish .... and aku notice that particular area (reddish area) ... is warm ... i mean really warm ... while other parts of Ammar's body suhu normal je ... x le mcm demam ... only dat part yg warm ... so aku assume dat part sure sedang berdenyut2 ....coz bila aku sentuh sket pon Ammar akan terjaga & menangis ... poor Ammar ...

utk kesekian kalinyer i feel so hopeless & useless ... i cant do anything for my lil angel selain berdoa moga sakit yg Ammar tanggung dikurangkan ... how i wish i cud bear all the pain for Ammar .... it really breaks my heart ... hati rasa spt dirobek2 bila tgk Ammar mengerang & meragam sambil menahan kesakitan ... rasa cam x abis2 Ammar suffer, one after another ... i hate this feeling!!! sob .. sob .. sob ...:'((

Ya Allah!! aku merayu & memohon kepadaMu ya Allah ... ringankan lah beban kesakitan yg ditanggung oleh anakku, Ammar ... permudahkanlah segalanyer buat Ammar ... Amin!!!

Wednesday, May 12, 2010

marah ....


salam

pardon me, been bz lately ... plus mood nk update blog agak kureng ... eversince aku down wth a very bad sore throat (which affected my voice ... sampai skang suara aku on & off hilang), fever & flu last 3 weeks ... rasa cam badan x bape nk ok lagi ... at times rasa sgt penat ... or maybe coz aku ni dah overweight sgt2 ... i wonder .... hmmmm????

anw, sehari dua nih mood agak panas ... rasa sgt2 kurang sabar ... ada a few insiden yg buat aku rasa nk maki org ... citernyer pasal kontraktor yg suppose install aircond kat umah smlm ... i strictly told the sales asst before aku beli aircond ni that i wanted them (contractor) to come before 12 coz Ammar ada CDC appt kat HUKM ... dunno wat went wrong dorang x muncul, aku dah hangen ... so reschedule ptg plak (aku bajet pkl 4 ptg Ammar dah abis CDC appt) ... tp sampai sudah dorang x muncul ... yg buat aku sakit ati, bila aku call that guy (contractor) boleh pulak he put all the blame on me!!!

WTF!!! walaupon aku x maki, but i was this close to do so ... but i did yell to him coz rasa sgt2 marah ... dah terang2 dlm resit tu dah tertulis "before 12pm" ... dorang yg x dtg as promised pastu bila aku dah reschedule pkl 4 (aku arrange ngan sales asst) ... dorang pandai2 plak nk dtg pkl 3 ... pastu bila dorang x sempat nk dtg umah aku sedap mulut je dia ckp "tadi saya mau dtg pkl 3 u kata tak boleh, bkn salah saya!!" .... WTH!!! Astaghfirullah ... setan apa plak dah masuk dlm badan aku nih??? or maybe time of the month is just around the corner ...

akhirnyer tghri tadi dorang baru dtg nk install aircond tuh ... tp yg aku bertekak kat tepon tu x dtg ... aku rasa dia hot ngan aku kot ... elok gak arr ... aku pon nyampah ngan dia, suka suki je nk blame aku ... dia ingt aku pegi HUKM smlm tu suka2 kot ... hampeh!!!

x abis lagi citer aircond nih ... gedebak gedebuk pkl 1 thgri baru settle install ... pastu kontraktor tu soh aku on aircond for 2 hours ... siap pesan kalau x sejuk call dorang balik ... since aku dah cuti smlm, aku terpaksa gak pegi keje ari nih, walaupon masuk sgt2 lambat ... so i just left it on and pesan ngan anak dara aku utk masuk bilik aku now & then rasa aircond tu sejuk ke x ... on da way to office, sales asst senheng tu call aku kata actually kontraktor yg pasang aircond kat umah aku tu call dia bgtau yg gas aircond tu x balance ... ada problem, so sales asst tu kata dia immediately call samsung bgtau problem aircond aku ... haiyohhhh!!! WTH!!!

dah le ko lambat deliver aircond aku as promised, skang ko bg aku aircond yg x sejuk plak ... after that i received a few calls from samsung bout this matter ... i hope they will resolve this problem ASAP ... otherwise aku akan amuk tok nadim kat senheng jalan gombak tuh .... dah le aku beli siap ngan waranty 5 tahun ... xpe, bg dorang settle hal ni sehari dua nih ... aku bkn lah org yg x bertimbang rasa ... try my best to tolerate gak ... kalau still x sejuk gak aircond tuh siap lah!!!

okey ... enuf of that 'hot' story ... on the other side of my life, nothing much ... apart from a few times Ammar buat 'stunt' sampaikan nanny yg jaga dia tu had to call me (coz she's panic!) ... Ammar ... Ammar ... x abis2 ngan 'stunt' dia tuh ... but i'm glad that dah 2 wks Ammar x demam ... Alhamdulillah syukur!!!


kemain lagi tersengih anak aku nih ... sempat lagi aku amik pic Ammar sambil menunggu kat CDC, HUKM ...


oh yes ... pasal CDC (child development centre) appt tu, bila sampai sana dorang bgtau Ammarnyer appt dah di postpone kan... dan septtnyer somebody call aku bgtau pasal ni, unfortunately nobody calls and tell me bout this ... anw, they already set a a new date for Ammar ... which to me sgt2 bagus coz pada hari tu semua pakar terapi (occupational, speech, physio & feeding) akan observe Ammar dlm masa yg sama utk menentukan cara terbaik utk bantu Ammar ...

hari sabtu ni plak ada ceramah "Bagaimana memudahkan skill komunikasi utk anak2 dgn sindrom down" ... bg aku tajuk nyer pon sudah cukup menarik perhatian aku ... definitely i will be there ... at rumah PSDM di Jln U-thant pkl 10 pg ... i really looking forward utk menghadirkan diri ngan aktiviti2 camni yg boleh membantu aku/kami utk lebih memahami anak2 down syndrome ... i just want the best for Ammar ...

Thursday, May 6, 2010

Al-Fatihah buat baby Kimi ....

salam

pagi ni aku dikejutkan ngan perkhabaran sedih bila aku terbaca stat seorg teman di YM ... berderau darah aku ... hampir x percaya ngan apa yg aku baca ... x mungkin ...

baby Kimi baru berusia 1bln 21 hari .. ibunyer Lyn, aku kenal di alam maya, kami x pernah bersua muka .... tp Lyn skali skala disaat aku sedang 'down' bila Ammar sakit dulu meninggalkan kata2 semangat buat aku ...

aku ingt lagi sbb utama aku add Lyn kat FB dulu .... aku baca terbaca kisah sedih di blog Aqish pasal arwah manja (anak Lyn yg ke-3), kebetulan Ammar juga sedang bertarung nyawa di icu waktu tu ... terus aku wat muka x malu , tanya Aqish pasal profile Lyn kat FB coz aku x dpt nk baca kisah arwah manja ... aku pon x tau nape aku wat camtu, i was desperately looking for somebody yg senasib ngan aku agaknyer... so dari situ lah aku kenal Lyn ... tp by da time Lyn accept friend request aku, arwah manja telahpon kembali ke rahmatullah .... sebak hati aku ...

pagi ni skali lagi ... Allah duga Lyn sekeluarga ... baby Kimi telah kembali ke Penciptanya ... Innalillahainnalillahirajiun .... setakat yg aku tau, puncanyer cuma demam biasa ... baru je aku baca stat Lyn di FB 2-3 hari lepas ... katanyer Kimi demam, tp mulut bising pokpekpokpek ... x sangka plak ini akhirnyer ...

buat Lyn & family, i know its easy for me to say ... walhal yg menanggung & melaluinyer Lyn ... moga tabah menghadapi ujian ini skali lagi ... byk2 bersabar & redha ... pasti ada hikmah disebalik setiap kejadian ... Al-Fatihah skali lagi buat arwah manja & baby Kimi ... :((




Monday, May 3, 2010

haaaa .... boleh pon!!!



salam

rasa cam dah lama sgt x hapdate blog nih ... sebtolnyer sejak ari sabtu aku try sign in acc blogspot nih ... x tau mana silapnyer x bley memanjang ... tension gak arr coz bila ada kelapangan & idea dah dtg, dan2 tu plak x bley nk sign in ... nih bila aku saje try boleh pon ... tp tulah, kejap2 kang font dia haywire, bila type elok, bila publish tulisan jadik sekecik2 alam .... hampehdotcom btol!!!

anw, skang idea tu pon ntah kemana ... aku pon dah lupa apa yg aku nk hapdate kan kat blog nih ... aisehmen!!! lately nih makin menjadi2 lak sindrom lupa ... walaupon bende2 kecik tp tetap okeh ... bila dah terlupa tu rasa sgt marah ngan diri sendiri ... over!!!

oh yes ... bg yg tanya khabar Ammar, terima kasih ye .... Ammar sihat walafiat, Alhamdulillah (simpang malaikat, mintak jauh ... coz everytime aku wat entry kata Ammar sihat, tup tap dia sakit balik) ...

skang nih Ammar gi nursery pakai uniform ... bkn uniform grand pon ... cuma diwajibkan Ammar pakai t-shirt kolar khas kaler ijau yg ada logo PSDM dan nama Ammar ... dulu pakaian bebas, x kisahle nk pakai kan baju apa pon ... kaler apa pon xde hal ... tp skang nih dah diwajibkan tiap hari pakai baju tuh ke nursery ... alasannyer skang nih ramai pelawat yg melawat Rumah Persatuan Sindrom Down Malaysia ... kekdahnyer nk impress semua yg dtg situ kot ... x kisah le pon, aku sker je tgk Ammar pakai baju tuh ... cam sesuwai ngan kulit Ammar yg cerah tuh ... seb baik ikut kulit abahnyer, kalau ikut kulit mommy alamat cam yenna yenni lah ... hiks! (no offence k, takot ada yg terasa hati lak)




happy tgk Ammar masa nih, dah siap2 nk gi nursery ... sambil tunggu mommy bersiap, bg Ammar dgr lagu dulu ... tu yg dok sengih2 ... ngah dengar lagu fevret la tuh!!!


and satu lagi, aku rasa masa amat mencemburui aku ... kejap je wiken berlalu ... tau2 aku dah tiba masa utk aku tinggalkan adam ... seb baik lah plak kali ni aku balik ampang Adam x nanges ... kalau x tuh, tiap2 kali balik ada je adegan air mata ... esp aku & Adam ... sian Adam, hopefully Adam paham kenapa dia kena duduk berjauhan ngan aku dan tinggal ngan atok & nenek ... tetiba aku miss Adam ... miss sgt2 ... padahal baru jap nih aku call dia sblm dia ke skolah agama ... mommy loves u soooooo much baby (he is still my baby, sampai bila2 pon!!)

adam ... adam ... ada2 je ... nih konon misai ala2 mr. potato ... nak gak beli misai nih, geram btol aku!!

en hubby plak sampai ari nih tension coz mlm tadi masa bwk Adam gi tgk Iron Man, hp en hubby tertinggal lam panggung ... within 10 minutes dtg balik dah xdok!!! giler meroyan laki aku, dah le call D*#$ customer service cam hampeh, lepas 2 jam baru boleh report lost ... mmglah dah sampai masa en hubby kena tukar hp ... coz yg hp yg ilang tuh giler kedaung pasal pantang nmpak dek Ammar jadik bahan balingan je ... tu en hubby ngah fenin pasal bajet nk beli hp plak ... haishhhh ... ada2 je lah ... lepas satu ... satu ... dugaan sungguh!